Medicine

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Health-related quality of life of parents of children with feeding disorders in a tertiary care clinical setting in Western province, Sri Lanka.
(University of Kelaniya, Sri Lanka, 2023) Nirmani, N.; Dharmarathne, N.I.;
BACKGROUND: Parents of children with Feeding Disorders (CFD) have to be much stronger in their lives by keeping good Health-Related Quality of Life (HRQoL), as they are primary caregivers of children. It is extremely beneficial for clinicians and researchers to explore the HRQoL of parents of CFD to continue optimal care for children in Sri Lanka. OBJECTIVE/S: The aim of the study was to examine the impact of children’s Feeding Disorders (FD) on their parents’ health-related quality of life (HRQOL) in Sri Lanka. METHODS: Demographic, economic, and feeding history were obtained from 246 parents of CFD, aged between 6 months and 7 years, who receive feeding therapy at a community multidisciplinary care center. Participants completed standard adapted assessments on identifying the severity of feeding disorders (Pedi-EAT) and its impact on their HRQoL (FS-IS). Statistical analysis was performed on data using the Statistical Package for the Social Sciences (SPSS) version 26.0. RESULTS: The results indicated that caring for CFD issues negatively affected the caregivers’ health-related quality of life (HRQoL). Independent sample t-test revealed that mothers of CFD have significantly lower HRQoL compared to fathers (t (245) = .947, p=.001). HRQoL of parents has not significant different when the severity of feeding disorders of their children was higher. But socio-demographic factors directly affect HRQoL. Similarly, long-term FD in children showed significantly higher worry among parents and restrictions to their daily activities, reducing their HRQoL. CONCLUSION/S: In conclusion, this is the first study of this nature conducted in Sri Lanka to investigate parents’ HRQoL of CFD. The findings of the study expand our understanding of the impact of pediatric feeding disorders on the parents and families, which is a critical element in determining the effectiveness of healthcare intervention for CFD and their prognosis. Clinicians need to pay attention to factors that could improve the HRQoL of parents of CFD, in order to offer more effective care.
Parental perceptions of stuttering in children: a systematic review of the literature
(Taylor & Francis, 2022) Nonis, D.; Unicomb, R.; Hewat, S.
ABSTRACT: Parental perceptions towards stuttering and early treatment are vital in the identification and management of stuttering in children. The aims of this paper were to review the studies on parental perceptions towards stuttering and stuttering therapy, identify strengths and gaps in the relevant literature and provide recommendations for future research. A systematic review of the literature was undertaken. Six electronic databases were searched to identify studies that have explored parental perceptions towards stuttering and early treatment of stuttering. The search was limited to peer-reviewed studies, published in English between 1970 and 2019. Data were extracted from the eligible studies and the findings were analysed using a qualitative deductive content analysis approach. Twenty-one studies were included in the review, conducted in nine different countries, with the majority published in the past 10 years. Among them 12 studies have explored parental perceptions of stuttering and 11 have explored parental perceptions of stuttering therapy. Findings showed limited parental knowledge about stuttering and the presence of variable attitudes and reactions towards stuttering. Parental perceptions about stuttering therapy were generally positive. The review highlights the importance of educating parents about causal factors, progression and impact of stuttering as well as the importance of early intervention. The absence of research in countries where speech and language pathology as a profession is emerging, suggests the need to explore parental perceptions towards stuttering which will impact on quality of life of children who stutter.
Psychosocial outcomes of children and parents after renal transplantation.
(Sri Lanka College of Paediatricians., 2015) Ranawaka, P.R.D.; Abeysekera, C.K.; Gamage, M.P.; Illangasekara, O.R.; Silva, G.R.C.; Mettananda, D.S.G.; Pathmanathan, T.; Abeyagunawardena, A.S.
Introduction: Although some highlighted problems such as parental stress, child behavioural problems and financial instability occur after transplantation, much still remains unknown about the extent, nature, reasons and implications of family difficulties caused by renal transplantation in childhood. Objectives: To examine the psychosocial aspects, levels of parental stress and behavioural problems among children after renal transplantation and to study the predictors of psychosocial issues in the study sample. Design, setting and method: A cross sectional analytical study was conducted at the University Paediatric Unit of the Teaching Hospital, Peradeniya in September-October 2012. All patients who are being followed up at the post renal transplant clinic were recruited to the study. Data was collected using an interviewer-administered questionnaire and analyzed using SPSS 16.0. Results: Thirty-eight recipients of paediatric renal transplants were recruited. 67.5% were males. Feeling of happiness constantly or regularly was reported by 82.5% of children while irritability was a significant problem in 47.5%. Sleep disturbance was a recognized problem in 50% of children. At 2 years of transplantation 85 % of children had not attended school but at 5 years after transplantation school dropout was 10 %. This difference was statistically significant [X2=25.8, p<0.001]. 52.5% of parents had expressed their stress on a constant or regular basis. 37.5% of fathers had lost their jobs consequent to renal transplantation and 30% of families had a monthly income less than LKR 10, 000. Conclusions: 82.5% of children reported feelings of happiness on a constant or regular basis after renal transplantation. Non-attendance at school was observed in 85% at 2 years of transplantation but the school dropout was 10% at 5 years after transplantation. 52.5% of parents had expressed their stress on a constant or regular basis.

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