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DC Field | Value | Language |
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dc.contributor.author | Kumarasinghe, J.K.S.T. | - |
dc.contributor.author | Hettiarachchi, S. | - |
dc.date.accessioned | 2023-10-16T04:58:34Z | - |
dc.date.available | 2023-10-16T04:58:34Z | - |
dc.date.issued | 2023 | - |
dc.identifier.citation | Proceedings of the Infocus 2023. Faculty of Medicine, University of Kelaniya; 2023:21 | en_US |
dc.identifier.uri | http://repository.kln.ac.lk/handle/123456789/26744 | - |
dc.description | Oral Presentation - Infocus 2023, 24 July 2023, Faculty of Medicine, University of Kelaniya, Sri Lanka | en_US |
dc.description.abstract | BACKGROUND: Feeding difficulties are common in children with developmental disabilities and the Percutaneous Endoscopic Gastrostomy tube is the most common long-term alternative feeding method used among them. Anecdotally in the Sri Lankan context, there appears to be a reluctance to go through a PEG insertion. There is a need to undertake a research study on the parental decision-making process and the post-management of PEG to understand how speech and language therapist can better support parents. OBJECTIVE/S: The main purpose of this study was to explore the parental experiences on the decisionmaking process regarding PEG insertion and its post-management in children with developmental disabilities accessing a university clinic in Sri Lanka. METHODS: This was a qualitative study using a phenomenological approach. Ten parents who have a child with a developmental disability, aged between one to eight years with one to three years of PEG experience with their children were the participants of this study. Semi-structured interviews were conducted using an interview guide which consisted of 10 questions. The qualitative data were analyzed using a simple thematic analysis. RESULTS: The study results indicate the lack of awareness and miscommunication with professionals throughout the decision-making process of PEG and the lack of parental satisfaction with it. However, they were satisfied with the speech and language therapist’s involvement in both decision-making and the monitoring process in the post-management of the PEG procedure. Also, negative societal views made the parents reluctant to consider a PEG and it affected post-PEG management as well by limiting societal participation in meal times due to visibility. The parents also described the strengths and challenges of post-PEG management. All the parents were satisfied with the decision that they made to go through with a PEG for their children with developmental disabilities due to the lack of complications on the PEG procedure and as a long-term alternative feeding method. CONCLUSION/S: Parental awareness on the PEG procedure supports the decision-making process. Professional involvement is important in providing adequate information with a key role for the speech and language therapist. | en_US |
dc.language.iso | en | en_US |
dc.publisher | University of Kelaniya, Sri Lanka | en_US |
dc.subject | Decision making | en_US |
dc.subject | Post management | en_US |
dc.subject | PEG | en_US |
dc.subject | Speech and language therapist | en_US |
dc.title | Parental experiences of the decision-making process regarding percutaneous endoscopic gastrostomy tube insertion and its post-management in children with developmental disabilities accessing a university clinic in Sri Lanka. | en_US |
dc.type | Article | en_US |
Appears in Collections: | IN FOUCS: Building Collaborative Partnerships - 2023 |
Files in This Item:
File | Description | Size | Format | |
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Final abstract book (2)-21.pdf | 315.36 kB | Adobe PDF | View/Open |
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